Our insurance plan approved our request/referral to take Emmy to the Gillette Children's Specialty Hospital in Minnesota which is supposedly a regional leader in the care and treatment of Rett Syndrome. I have to say that I am still pretty shocked that Chicago, the 3rd largest city in the United States doesn't have something like that!
There was some question as to whether or not our insurance would approve it because we have an HMO and they are not only out of network, but also out of state. It was frustrating to be told that "no one questions the fact that it would be the best care but ....." They were worried that he insurance would say no because they have neurologist at the hospital she goes to know, even though they haven't EVER treated a girl with Rett. GIANT kudos to Emma pediatrician who wrote 3 letters of medical necessity to the insurance company to make this happen!!
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| Emmy playing in her sandbox. |
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